The National Hydrocephalus Foundation (NHF) was incorporated in the state of Illinois in 1979 as a voluntary, not-for-profit, 501 C (3), public service organization. The objectives of NHF are: To assemble and disseminate information pertaining to hydrocephalus, its treatments and outcomes To establish and facilitate a communication network among affected families and individuals To help others gain a deeper understanding of those areas affected by hydrocephalus, such as education, insurance, tax and estate planning, employment and family
To increase public awareness and knowledge of hydrocephalus To promote and support research on the causes, treatment and prevention of hydrocephalus
NINDS Hydrocephalus Information Page - Definition, treatment, prognosis, research, clinical trials, organizations and additional resources rom MEDLINE Plus
The Guardians of Hydrocephalus Research Foundation (GHRF) was established in 1977 as a non-profit organization. Since then we have distributed over 10,000 information packets and received many phone calls every month answering important questions from concerned parents and worried individuals. Provides information to the public without cost so that a better understanding of hydrocephalus will be established. Provide counseling to families with children who have hydrocephalus to define specific problems that parents encounter and help resolve them as best as possible. We make many referrals to our doctors (more on page 3) who can assist individuals and their families through these tough times.
The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care.
The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.
Hydrocephalus Fact Sheet at National Institute of Neurological Disorders and StrokeNINDS - Definition, symptoms, causes, prognosis, types of hydrocephalus, treatment and research
The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.
Study to assess the development and neurological status of all children who were diagnosed as "mild ventriculomegaly" during the pregnancy in the last 6 years and to prospectively follow up all the children who will be diagnosed from the beginning of the study on for 6 years.